Monday, March 05, 2007

I can't help you.

I called the allergist Dr O's office today. I told the nurse about the not-so-successful trial with apples, and asked about the possibility of patch testing.

She said that Dr. O felt Baby E's reactions are not allergies, and recommended that we see a GI specialist as he didn't deal with these kinds of issues. He recommended the GI specialist we're already seeing, and the testing we've already done that came back negative. Meanwhile, she said, continue to avoid apples and the other foods that cause adverse reactions. Of course.

I asked whether patch testing might be helpful at all in identifying some of the foods that cause reactions. The nurse said that might be useful but we'd have to see a dermatologist for that, as Dr. O doesn't do it.

Finally, I asked if, when it came time to trial corn and soy, we could do an in-office food challenge. With immediate, severe symptoms including itching, rashes, GI symptoms and facial swelling to the smallest traces of refined corn and soy derivatives, I don't want to take a chance on doing those ones at home.

She said that, with the "true" serious food allergies, usually Dr. O. recommends that people do that type of testing themselves by parking in the emergency room parking lot to feed the food to their child. That way if the child goes into anaphylaxis, medical help will be right there.

Alrighty then.

Labels: ,


14 Comments:

Anonymous Anonymous said...

Is this guy for real? Kanga, if you can find a new allergist, I really think you need to. Preferably someone who specializes in food challenges. I have never ever heard of such an irresponsible thing.

Some of the things you have indicated make me really wonder. Of course, I don't have all the information. But, I would be really wary of this allergist.

Pax,

MLO

6:57 PM  
Blogger Unknown said...

Seriously?

I rather thought that challenge tests were supposed to be conducted in a room with resus equipment to hand. Or is that impossibly idealistic of me?

Just how are you supposed to have about as relaxed a testing atmosphere for a child as possible if you are all packed in a car in an ER carpark?

Regards - Shinga

7:55 PM  
Blogger my4kids said...

That seems really crazy, Purple. I would think he would want to see her reaction so he knows what your are talking about. I mean a dr should have the things to treat her if she had a reaction, wouldn't you think?

10:16 PM  
Blogger purple_kangaroo said...

MLO, we've seen all three of the allergists in the area who deal with kids as young as Baby E. The first one seemed to think that anything statistically unlikely was therefore impossible and could not be happening with Baby E. For instance, she couldn't possibly be reacting to all the foods she tested positive to and we saw symptoms with, because it's rare for a person to have more than 4 allergies.

He flat-out refused to help us find or have compounded a corn- and soy-free version of the medicine he wanted Baby E to try because the fact that her welts "weren't that big" meant she couldn't possibly really be reacting to trace amounts or derivatives as I explained she was.

The second allergist refused to include rice in the testing for grain allergy we were doing because "nobody is allergic to rice."

I'm not sure we'll be going back to any allergist again in the future. If we do, we may try allergist #2 again. I liked her the best out of the three, I think.

Shinga, I've never done a challenge test in an allergist's office, but I thought it was standard to at least have epinephrine right there at the ready in case of a bad reaction. I won't be doing the parking-lot version myself. :)

My4kids, that's what I would think, too. But this allergist barely even glanced at the photos I brought to show him of Baby E's rashes and swelling. He just wasn't that interested, I guess, since his tests came back negative.

11:32 PM  
Blogger Liz Miller said...

PK, I'm just speechless.

My one thought is maybe see an immunologist? But, y'know, you're doing a better job of taking care of E's allergies than any doctor could.

Hugs.

3:47 AM  
Blogger swissmiss said...

In the emergency room parking lot? Wow. I don't even know what to say.

To say nothing of all the bureaucratic billing challenges that would ensure.

4:35 AM  
Blogger Amy W said...

I'm glad I read this post! I am going to start allergy testing with my three year old. And now my one year old is showing signs of allergies...

8:19 AM  
Blogger chaoticfamily said...

I'm so sorry that you have so many struggles with Baby E... It's so difficult. I must admit with my girl I am afraid to try as many foods as you have. You are very brave. I know that our children's hospital has an allergy clinic have you thought of contacting your local children's hospital to see if they have a program that would be suitable for your daughter? I'm sure you have checked everything you really sound like your on the ball.

Keep on being positive!

Erinne

10:40 AM  
Anonymous Anonymous said...

Alrighty then, is right. Emergency Room parking lot test? I think not. Let's look for a renowned specialist outside our area. there has to be someone. I'll be looking, leaving no stone unturned. ;-)

11:24 AM  
Blogger a. borealis said...

Ack!! I can't believe it!

1:27 PM  
Blogger Heather said...

Sheesh, pk - if it were me, I would have post-traumatic (or present as the case would be) stress disorder from the extreme letdown from the medical community. On top of the allergies.

You amaze me - an amazing mama you are, and I'm praying for you all to get the medical help you need.

(hugs)

10:50 PM  
Blogger purple_kangaroo said...

Thanks, everyone.

11:55 AM  
Anonymous Anonymous said...

this guy is so insensitive. I would be in tears b/c of him. You are trying so hard to help baby E and he just seems to be so indifferent.
I will be praying for you to find someone who cares about your family and baby E.

12:05 PM  
Anonymous Anonymous said...

Is there someone to report him to???

12:17 PM  

Post a Comment

<< Purple Puzzle Place Home