Summary/Update on Baby E
Baby E is doing worlds better.
The tests for celiac disease and most other things came back negative. She has no damage to her esophagus or GI tract, which is very good news.
Baby E does have severe reflux, aspiration of thin fluids (water going down the tube toward her lungs when she drinks), anemia and a lot of allergies. The various medications, dietary changes and therapies are helping a lot.
We've found a great pediatrician, GI specialist and allergist, and will also be seeing a speech/swallowing therapist and a nutritionist.
They are still running a few tests and waiting for results to come back. One test showed that she is not able to digest a sugar, and we're waiting to find out which sugar is the problem. She is still having quite a few allergic reactions, so we are doing more allergy testing too.
Overall, Baby E is doing wonderfully. She started gaining weight again when we removed all corn derivatives from her diet several months ago. She has not had a bad screaming spell for at least a month or two, and she is now generally happy, energetic and even sleeping through the night regularly. Praise the Lord!
Thank you so much for your prayers and support during these months of worry.
The tests for celiac disease and most other things came back negative. She has no damage to her esophagus or GI tract, which is very good news.
Baby E does have severe reflux, aspiration of thin fluids (water going down the tube toward her lungs when she drinks), anemia and a lot of allergies. The various medications, dietary changes and therapies are helping a lot.
We've found a great pediatrician, GI specialist and allergist, and will also be seeing a speech/swallowing therapist and a nutritionist.
They are still running a few tests and waiting for results to come back. One test showed that she is not able to digest a sugar, and we're waiting to find out which sugar is the problem. She is still having quite a few allergic reactions, so we are doing more allergy testing too.
Overall, Baby E is doing wonderfully. She started gaining weight again when we removed all corn derivatives from her diet several months ago. She has not had a bad screaming spell for at least a month or two, and she is now generally happy, energetic and even sleeping through the night regularly. Praise the Lord!
Thank you so much for your prayers and support during these months of worry.
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Posted by purple_kangaroo at 3:26 PM[Permanent link]
12 Comments:
Sleep is a good thing... yay!
Glad you found a doctor you can feel comfortable with as well.
How nice to see a positive update! So glad she's doing so much better.
Curious Girl aspirated when she was a baby, and while her general health issues are worlds away from Baby E's, if you ever want to chat about aspirating and swallow therapies, I'm here.
Yay for you and Baby E! Finally the light at the end of the tunnel is coming closer!!! Praise God!
I'm SO happy you're all starting to feel better. And so grateful that Baby E. doesn't show any lasting damage from her health issues so when her allergy issues get all figured out it can be "no harm done". You're really an inspiration with your dedication to your family and how hard you work to give Baby E. the best food experiences possible with her limited diet. A lesser mom would just stick with the very basics and throw up her hands as far as having it taste good, I'm convinced. Ever thought about writing a cookbook for people who deal with severe food allergies?
Keep on feeling better!
I'm so glad to hear that Baby E is doing better. We will keep on praying!
It is wonderful to see the positive effects of your months of sleuthing. I'm so happy for you all. Give yourself a big pat on the back!
That is wonderful news!
Hooray!!!! You can't see me, but I'm doing a happy dance.
That is such great news! You must be so pleased.
So so so glad to hear this!!! All your hard work paid off triple-time.
PTL!! :-)
Thanks, everyone!
Susan, I may e-mail you if I have questions about the swallow therapies. Thanks.
DebbieS, thanks. I have thought about writing a cookbook. For now, though, I just write my recipes on my food blog: Restricted Gourmet. That's rewarding and fun.
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