Wednesday, October 25, 2006

Mama Bear Going to Battle

I found a copy of the package insert for the 5% dextrose lactated ringer solution used in IVs. It's on the FDA website--incidentally, a great resource for finding things like that.

It reads, in part:

Baxter Lactated Ringer’s and 5% Dextrose Injection, USP
in VIAFLEX Plastic Container


CONTRAINDICATIONS
Solutions containing dextrose may be contraindicated in patients with known allergy to corn or corn product.

##############

ADVERSE REACTIONS
Allergic reactions or anaphylactoid symptoms such as localized or generalized urticaria and pruritus; periorbital, facial, and/or laryngeal edema, coughing, sneezing, and/or difficulty with breathing have been reported during administration of Lactated Ringer’s and 5% Dextrose Injection, USP. The reporting frequency of these signs and symptoms is higher in women during pregnancy.

Reactions which may occur because of the solution or the technique of administration include febrile response, infection at the site of injection, venous thrombosis or phlebitis extending from the site of injection, extravasation, and hypervolemia.

If an adverse reaction does occur, discontinue the infusion, evaluate the patient, institute appropriate therapeutic countermeasures, and save the remainder of the fluid for examination if deemed necessary.

I also found out that there is an alternative readily available. Plain saline solution without the dextrose can be substituted, and should be available anywhere.

I'm starting a binder right now with a copy of the package insert, relevant parts circled in red. I'll add other relevant information and a statement from Baby E's pediatrician. I think he'll be happy to give us something saying that she has severe allergies, including corn and soy, and needs to completely avoid anything containing these ingredients.

That way I can keep that binder with me or in a readily accessible place, available at all times. I don't want to end up in the emergency room some day arguing with some lunkhead about why Baby E can't have an IV with dextrose in it.

I'm thinking I should probably get some kind of medical alert bracelet or something for Baby E to wear, too, since an IV would be one of the first things placed in a real emergency.

There's no way I'm going to let a doctor mainline corn into my highly allergic baby's system. Not this mama.


12 Comments:

Anonymous Anonymous said...

P_K, I'm sorry this is such a battle for you. You are such a strong, motivated and concientious Mama. You deserve to have some things figured out soon!

8:10 AM  
Blogger ttulizzy said...

You go girl! I can't believe the doctor gave you trouble about it anyway! He seemed so rude, when he should have been sympathetic and listen to your concerns! I hope everything works out!

8:27 AM  
Anonymous Anonymous said...

What the other liz and madeleine said.

And I think the binder idea and the medalert bracelet idea are both genious.

-Mystery Mommy liz

10:03 AM  
Blogger Kevin said...

Wow. I'm so impressed by what a great job you are doing.

I imagine you won't be seeing him again, but that GI specialist needs to wake up to his sloppy behavior, and use his patient's name, learn more about allergies, have a better bedside manner, etc.

God bless, you are in my prayers.

10:41 AM  
Blogger Kevin said...

This is all very new to me, but I came across a section on the Wikipedia page for Lactic Acid that states:

"Although it can be fermented from lactose (milk sugar), most commercially used lactic acid is derived from bacteria such as Bacillus acidilacti, Lactobacillus delbueckii or L. bulgaricuswhey to ferment carbohydrates from sources such as cornstarch, potatoes or molasses."

Nevertheless, I imagine that the dextrose is still the biggest problem.

10:59 AM  
Anonymous Anonymous said...

Oh, I can't read this ANYMORE (I can't take it)!! I feel so sorry for baby E!!!! You'll have to call me when you get this resolved!!

With prayers,
Colleen ;-)

11:13 AM  
Blogger purple_kangaroo said...

Madeleine, thank you!

Liz, I was so apologetic at first and thought it was all my fault, but the more I think about it I can't believe how rude he was, either. We're not going back to him.

Liz mysterymommy, thanks . . . I think having a binder is going to be really helpful.

Thanks, Kevin. You're right about the lactic acid. Another corn allergy sufferer mentioned that she had problems with the lactic acid. I think using plain saline solution will be an option . . . hopefully the new GI specialist we'll be seeing will take Baby E's allergies more seriously.

Colleen, please feel free to not read my blog, of course. What we're dealing with right now is pretty intense and sometimes depressing. I know you're praying for us, and I appreciate that.

11:58 AM  
Anonymous Anonymous said...

I'm feeling rather ferocious right now, so I'd really LOVE IT if you'd march into your next appt with your arsenal of information in hand and really STICK - IT to that bloody GI Ped. What a moron. This is why we (The Public) needs to be so vigilant over our own health and healthcare. Ridiculous. Imagine if another person in your place meekly said, "Ok, I guess you're right...snivel-snivel" and suffered horrendous consequences because of it!!

You must feel a combination of vindication and rage.

What a fool.

I'm proud of you!!

1:00 PM  
Anonymous Anonymous said...

SO smart, P_K. That binder is a brilliant idea. Also the Medalert. Good good good mama bear thinking.

2:20 PM  
Blogger ccw said...

I'm so sorry that you are having to battle, but you are doing an excellent job of taking care of Baby E.

The binder and the bracelet are a great idea.

6:04 AM  
Anonymous Anonymous said...

P-K -- I'm going to echo everyone else's sentiment and say that the idea of the binder and MedAlet bracelet are truly inspired ideas.

It's clear that your GI doc clearly had the inflated ego of someone who thinks that a medical degre affords him a near god-like status, and who is a person who Must Not Be Contradicted. Jerkface. I'm glad that you are such a strong advocate for Baby E (not to mention AJ and M&M) and I know how draining all this is on you. You are doing a fantastic job, and I hope you discover something soon that Baby E will eat without reaction, and will LOVE, and will NEVER develop an allergy to.

I know you are also struggling with the idea of weaning, but that will end one day, and then your own diet can be a little more varied.

6:57 PM  
Blogger purple_kangaroo said...

Thanks, everyone. I started making the binder today, canceled the appointment for the endoscopy with that GI specialist, and formulated a cover leter for the FAX I'm going to send him.

KLee, I'm not having mixed feelings about nursing/weaning at this point. I'm just really glad Baby E is still nursing because then I know she's getting at least some good nutrition even when she won't eat much.

3:32 AM  

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